Thoughts From One Caregiver to Another

Cameron has written to me and asked me to post some thoughts on caregiving when helping someone who has an illness or a parent/caregiver who has a special needs child in their home.  It is important to realize how helping take care of others can affect our health and wellbeing as well.  Here are the points Cameron has found work for him as he cares for his wife with a very rare and deadly cancer called mesothelioma.  These will also be beneficial for those with special needs children:

1.    Accept all offers of help

2.     Take time for yourself

3.     Make your own health a priority

4.     Know your limits

5.     Don’t be afraid to reach out to friends, family or even strangers if you feel overwhelmed

6.     Be clear and direct when asking for help

7.     Become an expert on the condition – Learn all you can

8.     Make lists

9.     Prioritize

10. Get organized

11. Join a support group

12. Talk to other caregivers

13. Budget

14. Make use of technology

15. Ask questions

16. Carry a notebook everywhere

17. Make use of any and all resources available to you

18. Know your employment/compensation rights

19. Try to maintain a normal schedule

20. Always hold on to Hope!

 

Today is also National Mesothelioma Awareness Day!  Cameron and Heather have helped organize an online awareness campaign, which will run all day today.   Here is the link to Cameron and Heather's page that has all the information on how to participate: http://www.mesothelioma.com/heather/awareness/