Thursday, September 26, 2013
Cameron has written to me and asked me to post some thoughts on caregiving when helping someone who has an illness or a parent/caregiver who has a special needs child in their home. It is important to realize how helping take care of others can affect our health and wellbeing as well. Here are the points Cameron has found work for him as he cares for his wife with a very rare and deadly cancer called mesothelioma. These will also be beneficial for those with special needs children:
1. Accept all offers of help
2. Take time for yourself
3. Make your own health a priority
4. Know your limits
5. Don’t be afraid to reach out to friends, family or even strangers if you feel overwhelmed
6. Be clear and direct when asking for help
7. Become an expert on the condition – Learn all you can
8. Make lists
10. Get organized
11. Join a support group
12. Talk to other caregivers
14. Make use of technology
15. Ask questions
16. Carry a notebook everywhere
17. Make use of any and all resources available to you
18. Know your employment/compensation rights
19. Try to maintain a normal schedule
20. Always hold on to Hope!
Today is also National Mesothelioma Awareness Day! Cameron and Heather have helped organize an online awareness campaign, which will run all day today. Here is the link to Cameron and Heather's page that has all the information on how to participate: http://www.mesothelioma.com/heather/awareness/
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